Wednesday, November 11, 2015

Perinatal depression - It's a Thing!!

Perinatal depression (PND) - it's a thing you know!?

The term Postnatal Depression implies 'after' and this can confuse people, it can trick them into thinking that PND 'happens' only after a baby is born.

But this is deceiving!

Perinatal depression can begin during the trying-to-conceive stage, the pregnancy stage, soon after the baby is born, much later after the baby is born, it can come to Mums, to Dads, to carers, it's biology can be environmental, social, hormonal, neurological, transitional, short term, long term, subtle, extreme, managed by self care, managed by diet, managed by medicine, managed very well, not managed very well, diagnosed, not-diagnosed...


                                                            Perinatal depression has layers. Many layers.


Mine arrived basically over night when I was about a month pregnant. It came to me at a time when I was involved in the running of a PND research project through the University of Tasmania and whilst I was supervising a masters project in Postnatal Depression. I knew SO much about the topic and I felt SO much empathy for the women I was involved with who were living with this condition. I was grateful that even though I was feeling sick, tired, grumpy, flat, tired, uber-sensitive, claustrophobic, tired, hard-done-by, anxious (did I mention tired? Make that EXHAUSTED), even though I was feeling all of these things I was so lucky that I didn't have PND!

Mine was all just part of being pregnant, right?

After my babe was born I completed all those forms with the confident air of the health care professional that I am. I was a Mum who knew all her options, knew what to expect and what PND would look like. Also I wasn't a first time Mum, so I had this in the bag. I completed those Edinburgh Postnatal Depression Scales like a boss!

But the Edinburgh Postnatal Depression Scale (EPDS), that can also be deceiving!

Q) Have you blamed yourself unnecessarily when things go wrong?
A) No way, I just blame everyone else. Totally fine. Excellent. Low score

Q) Have you been anxious for no good reason?
A) Well working out how to manage two children is a good reason to be anxious, isn't it? Cool, that's a no then. Excellent. Low score.

Q) Have things been getting on top of you?
A) Well, um... I have kids. Ridiculous question. I'm answering no. Good-oh. Another Low score.

GREAT! Another low scoring EPDS assessment. I mean, I'm exhausted and feeling like crap, and sure, sometimes I feel like I'm drowning... But look, here we are at the child health clinic, on time for our appointment, all dressed, coffee in hand. Low score on the EPDS, things obviously aren't that bad!

I may be struggling but this is all just part of being a Mum, right?
                                                                           

But, of course, I did have PND. It occurred to me out of the blue one day (I'm quite certain a cartoon light bulb would have appeared above me!) and in that moment of realisation it felt like a tonne of bricks had been lifted from my shoulders. When I put all the pieces together and realised, without a doubt, that what I was experiencing was a (pretty severe) case of perinatal depression I felt relieved, happy almost, VALIDATED!

"It's OK" I told myself, "I'm 'just' one of the 1 in 7 (or more) - this is common, treatable and real. This is not my new forever, this is a mental health issue, this is something that can be treated."

And still after 2 years I continue to manage it very carefully.

Usually I'm happy, sometimes I'm sad, sometimes I score 3 on the EPDS and sometimes I score 10. I smile and I cry. I'm aware of my self care, my diet, my medical treatment options, I have a psych and I have the Lifeline Telephone Counselling number (13 11 14) saved in my phone (just in case). Sometimes I crash in a heap for a couple of days but generally life is pretty steady and wonderfully enjoyable. PND continues to be the hardest hand I have ever been dealt but when I put it in context, I'm just one of 1 in 7 (or more).

I'm certainly not alone.
                                                                         

If you're confused about what perinatal depression is, if it could be affecting you or someone you love or if you need to reach out for support please do not hesitate to contact PANDA who have a wonderful site full of educational tools and support options and avenues.

November 15th - 21st (2015) is Perinatal Anxiety and Depression Awareness Week so this is the time to educate yourselves and each other about PND :)
















Friday, February 27, 2015

"She lost her battle to cancer"

Upon the tragic passing of Jess Ainscough yesterday I feel compelled to briefly discuss the importance of death literacy.

Today social media has been inundated with posts, reports and media coverages about her death and I am pleasantly amazed that not once have I come across the phrase "lost her battle to cancer". 

Why do we insist on using this phrase? It is personally degrading, represents failure, encourages negative death literacy and most of all describes nothing of the strength, bravery, self respect, love and freedom that is experienced within one's final moments of life.

It is time to really think about the words we use when describing someone else's death. Death comes to us all and as such we must find a way to talk about it fearlessly and gracefully.

Would you want your own death to be described as 'losing a battle"??

http://www.thegroundswellproject.com/


Thursday, January 15, 2015

You don't know you want to do this yet, but trust me, you SO do!

Self Care.

Something we hear a lot about, we know we should be doing, we put it off, not sure where to start, too busy...

Well here is the simple and blissful answer. THIS VIDEO! This girl is a self care genius. Here she has created herself an outlet for verbal and non-verbal self expression, emotional connection and release, confidence and increased sense of self, physical exercise, enhanced energy levels and most of all FUN!

This girl should be nominated for some kind of award - an Oscar maybe??? One day I hope! But for now I'll put up my hand and nominate her for OMMG Self Care Weapon of the Week!

So the takeaway message to this post is DO THIS! WHAT SHE DOES! (You know you want to!)

As your Registered Music Therapist I prescribe to you: 1 song of your choice, once a week (minimum). Trust me, you will feel GREAT!

(you don't have to record yourself btw!)




Monday, January 5, 2015

Why all Music Therapists (and perhaps all of humanity) should give a big ol' THANKYOU to Woody Guthrie...

Obviously you know who Woody Guthrie is, right? (Legendary American singer-songwriter, folk musician of the 1900's who's guitar read "This Machine Kills Fascists"). Well as if his guitar wasn't revolutionary enough here are four examples of just why we should all thank Woody for his contribution to life as we know it...

1) Firstly, his contribution to children's music.
Yep, The Wiggles are great, love Justine Clark, Twinkle Twinkle and similar nursery rhyme classics will always have a place, but THANKYOU Woody Guthrie for producing children's music for children AND grownups!!

Written and recorded in the 1940's Woody was one of the first popluar male singers to provide music for our babies, composing and recording Songs to Grown On For Mother and Child and Work Songs To Grow On, both considered children's classics and adding to his status of 'Effing Legend'.

Woody's 'music therapist-esque' approach was to write repetitive style songs that dealt with themes significant to children, and written in language used and understoon by children. These themes include friendship (Don't you Push Me Down), family (Ship in the Sky), community (Howdja Do?), chores (Pick it UP), responsibility (Cleano) and fun (Riding in My Car). 

As such these songs could and should be sourced and used by parents, educators, therapists and, well, basically anyone who sings with, or plays music to, children! The added bonus is that not only are they relevant, lacking the almost condescending nature of many children's songs, but they are great to listen to and can roll on repeat for hours without Mum and Dad loosing the plot.

Little Saka Sugar - 1947
One Days Old - 1947
I'll Eat You, I'll Drink You - 1947 (my all time fave)


2) His ongoing drive for 'What is Right'
Woody had a passion for justice. Having lived though majorly crazy historical events, (I'm talking the Great Depression, the Great Dust Storm, World War II, The aftermath of Unionism, the Communist Party and the Cold War to name a few) - he was determined to use his powers for good. Thus he became the driving force behind a musical collaboration called The Almanac Singers. Together these guys focused on social causes such as unions, anti-fascism, free speech, equal rights, peace, racial and environmental issues, and anything else they believed in, in the best way they could; Through songs of political protest and activism.

If there was a way of ever knowing how many positive and political changes have come about through the power of people and song I'm sure we would all be gobsmacked! Even the smallest of changes has the power to snowball in to huge shifts in collective thinking. And no one can deny the sense of inspiration and motivation gained from listening to the 'right song' - so THANKYOU Woody Guthrie for giving us the right songs!
This Land is Your Land - 1940
Better World A Comin'
Jolly Banker 


3) The lessons we learnt from his tragic experience of Huntington's Disease
During the late 1940's, which was his early 40's, Woody began presenting with erratic, moody and violent behaviours. He was wrongly accused of persistent drunkedness. Was picked on by police for wandering, his mumbled protestations of being famous believed to be hallucinations. Actually, he was displaying the initial signs of the degenerative, neurolgocal disease Huntington's Chorea. During this time he was admitted to Greystone Park Psychiatric Hospital and remained institutionalised while the diesase slowly robbed him of his health, his talents (despite this he continued to create) and, at the age of 55, his life itself.


During the 1950's Huntington's Disease was still a mystery to most and, though there is still no cure, this meant his condition went untreated and he was given no proper care by the institution. (Fascists!) His journey with this horrendous disease brought much awareness and new understanding to not only the medical profession but to the population at large.   So THANKYOU Woody - for opening up eyes and avenues for improved health care.
I Ain't Got no Home in This World Anymore - 1944
So Long It's Been Good to Know You

4) Helping shape Bob Dylan into Bob Dylan
During his time at Greystone Park a teenage Bob Dylan routinely came to visit and care for Woody. With each visit he brought his guitar and sang to him - not Dylan songs - but Woody songs. In total 'music therapy-esque' style, in allowing him to hear his own work, Dylan potentially offered Woody experiences of validation, reminiscence, increased sense of self, quality of life, relaxation, cognitive stimulation, chronic pain management and acceptance.  Would Dylan have been the same Dylan he is now without such a significant experience of care and resilience at such an impressionable age? Who knows! 
So, just in case Woody... THANKYOU! 
Last Thoughts On Woody Guthrie - Bob Dylan, 1963

Unfortunately there is still no specific treatment or cure for Huntington's Disease, a disease which takes the lives of far, far too many. For more information on Huntington's Disease or to find out how you can donate to research you can access your relevant association via the following links..

Tasmania
Victoria
New South Wales
Queensland
South Australia and Northern Territory
Western Australia
United Kingdom
America